The medical world advised that the only option was for me to live as female, which I did for seven years. I felt like it was a super power, being female with a Y chromosome. I am blessed in that I received my diagnosis in a liberal household in the 21st century, and both my parents and doctors were so honest and supportive.
Before the final operation (castration) was due at age 16, I backed out, and was allowed to go back to a male role. Woman B: I felt confused and ashamed of my invisible difference — to an onlooker, I'm definitely a girl, without question.
After dozens of blood tests and doctor appointments, I was diagnosed with Complete Androgen Insensitivity Syndrome.
It's very similar to Swyer Syndrome, but people with CAIS don't have a uterus.
That means that I was born externally female, with a uterus and fallopian tubes, but with unformed ovaries.
Genetically, however, I have XY (male) chromosomes. There was no difference in me as a child, no ambiguous genitalia as an immediate alert, so I only found out once I failed to start puberty.
You're born with traits and characteristics of both sexes. For me specifically, being intersex means that I was born with Swyer Syndrome.So after months of not knowing what was wrong, the doctor walked into the room and said, ‘So tell me what you know about your testicular feminization….’ (Side note: Testicular Feminization is an antiquated term that is no longer used) And I had no idea what he was talking about.As a 17 year old girl I definitely didn’t want what was wrong with me to have anything to do with testicles. It was a traumatic experience and day, preceded by a lot of other traumatic poking, prodding, and behavior.I entertained thoughts that nature intended for me to be a boy and I questioned my gender identity.Woman C: The doctor who told my mom and me the news thought that I already knew of my diagnosis from another doctor I’d seen.